When I first met Scott back in November of 2008 he had a motion disorder. He wasn't sure what suddenly caused this disorder and why it would randomly take over his body. He would carry around crutches because he wasn't sure when the spasms would attack his body and he wouldn't be able to walk or sometimes speak until they subsided. Most of our dating life was spent visiting Doctors in Johns Hopkins, NIH and trying to get into the Mayo Clinic.
(after our visit at Johns Hopkins)
The doctors ran tests and had no idea what caused this disorder. Most of the Doctors were pretty discouraging. Since he couldn't make himself have the spasms I recorded him shortly after we were married because I was determined to get some answers and to find a cure.
The Doctors still could not figure out what is wrong with Scott and we continued searching for an answer. The spasms would make him lose control of his legs and he would fall to the ground so we were limited to what we could do.
Through out my pregnancy I had to not only make sure I was taking care of myself and our baby but also take care of Scott. I was stressed out knowing that he could have a spasm at any moment and was constantly worried about what I could do to help him. The EMT's were at our home at least twice a month. Since Scott is Type 1 Diabetic (has been since he was 12) the spasms would cause his blood sugar to drop drastically and the EMT's would have to come over and help him out. Scott would lose motor function, sometimes couldn't speak and his spasms were so violent he actually broke a hospital bed with them and had to have me, three nurses and a handful of Drs try to hold him down.
When I had Judah in December of 2010 Scott had a spasm in the hospital room. I remember holding Judah and crying while the nurses came in to help out Scott, wondering how are we going to do this. I'm not going to be able to trust Scott alone with Judah or he may have a spasm and drop him.
Then in February of 2011 Scott's boss read an article in the Washington post about this Olympic ice-skater who had random spasms and saw this Dr in Delaware who cured her. Scott contacted the Dr, Dr Matthews and we saw him. After a few sessions the Dr was able to essentially cute Scott of his spasms. Since then we are able to run together, Scott can hold Judah, move heavy things, eat foods he wasn't able to eat before and we have a better quality of life. But Scott still is losing weight. He eats more than Judah and I combined and he can not keep the weight on. So today Scott and his father are driving up to see Dr Matthews again. Dr. Matthews is going to work on Scott and also work on Scott's dad Mike. Mike hurt his hip really bad and we think that Dr Matthews can help him so he doesn't have to go into surgery.
If you get a moment, please pray that Dr Matthews is able to help Scott, that he is able to pinpoint why Scott is unable to gain weight and help fix the problem. It breaks my heart seeing my husband just get skinnier and skinnier and struggle with his blood sugars because of his weight problem. Also please pray for my father in law Mike, that Dr Matthews is able to heal his hip problem and restore it. Finally please pray for safe travel mercies. I always get anxious when Scott travels since he is diabetic, but I have to remind myself that he has had diabetes since he was 12 and knows how to take care of himself.
Also please pray for Judah and myself. That Judah doesn't freak out to bad with his daddy being away for a night and that we are able to actually get some sleep tonight. I haven't slept all week knowing that Scott was going to see Dr Matthews again today.
We would love if Scott could be spasm free and be able to finally gain some weight.